A Minute Equals a Lifetime

It has been more than a quick minute since I sat down to this blank screen to share. Over the last couple of months I have pondered the meaning and usefulness of this blog. If it serves nothing more than an avenue for me to throw caution to the wind and speak…as if I don’t do that on a daily basis…it is worthwhile.

Six and a half weeks ago I regained my driving privileges. Twenty two months ago I lost that. Do you know the county in which I live? New roads! New highways! Closed roads! New roundabouts! Can I tell you that the gas pumps are far more complicated now than they were 2 years ago? I wish all of you could have seen me pumping gas for the first time! It was comical in ways I can not describe! This week I refilled my tank without any issues and I was so excited I wanted to dance a jig at the gas tank. I wanted to shout to everyone that I figured it out. Alas, I realized people may think I was crazier than I really am, so I celebrated quietly…but I celebrated!

A month ago I realized my life changing accident had been more than 10 years ago. I look at my 12 year old, almost tall enough to look me eye to eye, and I recall looking at him just 16 months old and wondering how to move on. My oldest, now 17, was only 7, and in the first grade. We wrestled with how he might adjust to our changes. The morning of my accident I went and read a book to his classroom. It is engrained in my memory. I can recall all those innocent eyes looking into mine and waiting for each word. For the record, that teacher was the most incredible teacher my oldest ever had. Another sign that God’s hand was on our family. To this day when I see her, she calls my oldest by name and asks how he is doing. God’s plans, not ours.

Today I am registering that young man for housing at the college of his choice. Life has moved forward regardless of the obstacles that showed up. My son is writing his senior exit project about epilepsy, the treatment, the stigma and how life goes on. We have all grown in ways I can not describe because of this illness. I continue to see how my own health has opened the eyes of my children in ways I could not have taught them. They have learned by experience to show love, compassion and acceptance. These are traits I am glad my children exhibit.

Life goes on. In wealth, in health, in sickness and in death. Life goes on. What matters is that our foundation is firm. My foundation is in Jesus Christ. He is the creator and author of my life. Each day I must wake up and submit to His will for me. I must make the choice to trust in Him and only Him. He knows that I have a long list of reasons why I can not trust doctors! So I have to trust Him. Many days I awake forgetting to rest in Him. Those days spin right, left, up and down. I am reminded…in whom do I trust?

After nearly two years of seclusion I was not really ready to be thrust back into the world. I have had a bit of a culture shock. Over the weeks I have realized this, and begun to take things as they come, and as stupid as they come. I am not offended by those that beep their horn at me or give me the finger. “Move along” is what I say.

Before I was back on the road we had some rather large bumps that our family continues to work through each day. It serves as a blessed reminder to me to slow down and enjoy the road that I am allowed to travel. Today as I read my devotional, the first words said “Trust Me one day at a time…..Exert your will to trust Me in all circumstances. Don’t let your need to understand distract you from My presence.” I felt like a kid in the Presbyterian church and felt the need to close my book and bow my head repeating “this is the word of our Lord. Amen.” The devotion continued and reminded us that God equips us for each day, one day at a time and we will live in victory. “Trust Me one day at a time.”

This I must remind myself daily…trust in MY Lord one day at a time. I need not worry  about tomorrow because it will worry for itself. I must tell myself every day to lean on Him, share my worries with Him and He will carry me to the next day.

Thank you to those of you following my blog, praying for my family and praying for all good things to come to us. I am thankful for each of you as you are my adopted family willing to listen to my heart’s cry.

Copyright © March, 2016 Gatewood Campbell

 

 

Just Like That… It is 2016

As if in denial, today I finally flipped the calendar over to January 2016. For those expecting me to be somewhere over the last 4 days and I wasn’t there, now you know why. I never looked at the calendar. Time keeps passing, as my Grandmother used to tell me it goes faster and faster and then one day it is as slow as a turtle.

Last year was a fun year for our family. Our oldest, a senior now, has been working a part time job for over a year now. He is drumming with several bands and lives in a room busting with drums, cymbals and a small corner which some may call a bed. And yes, he is a happy 17 year old in his element. We are anxiously waiting for college letters but his first choice is already IN so the pressure is off. I’m proud of that kid. He is an adult in so many ways and takes care of far more than many other kids his own age. He manages to take care of his brother and me anytime his dad isn’t with us. He steps in and as if by nature he fills whatever role is necessary. I’m finally getting used to looking UP to him in stature and he is showing us each day other reasons to look up to him. He is an incredible example for his brother and he is all that I wished for in a son. It seems like yesterday when I heard that sweet little nurse down the hall whisper “she’s pregnant” and now he is ready to fly away from our nest.

Our youngest is in his first year of middle school. He has adjusted well, although there were minor problems when the kid with whom he shares a locker kept accidentally butterflying their locker. That means locking it with the lock facing the wrong direction. With some detailed instructions from Hunter (and I will tell you with Hunter when he wants to tell you something he doesn’t just tell you in detail, he acts it out in detail) the locker situation has been fixed and he seems to be adjusting just fine. He is still playing baseball and loves every second on the field, in the backyard or in the batting cages. Johnny finally gave in to getting grass to grow in the front yard bare spots for the pitchers mound and the bases. It was a fight we would never win anyway. It is so fun to watch kids at this age as they begin to find what they enjoy. He loves his time with his friends and he loves his down time in his room with a good book. In so many ways he is the opposite of his brother and yes also, everything I wished for in a son. I am a lucky mom with the best of all the world.

Last year, as I looked into 2015, my hope was for a cure for epilepsy and seizures. We went to great lengths to find that. According to doctors we did not get the answers for which we went searching. Here is what I do know, my entire family and fellowship of friends will surround me with every anticipated need I have when the occasion arises. My mother will put aside her life for 9 days and take on mother/father to a tween and full fledged teenager at the drop of a hat. The house will stay clean, the kids will wear clean clothes, the dogs will stay fed and walked (bribing a 12 year old is legal in NC when you promise a car ride to school) and my family will eat much better than they ever have in their lifetime when we need it. My marriage can survive being locked in a 10×12 room, eating bland hospital food, with nothing but a lame cable network to pass the time for 9 days. Oh and not one time did he tell me I smelled bad which I KNOW I did after all that time hooked up to machines 24/7. My husband willingly became an expert on “Say Yes to the Dress” and I binge watched every episode of “Big Brother” in 2 days, yay Netflix. Thanks to some very special friends we had some hand selected meals brought to us along with good visits and some special treats delivered from family and friends from the UPS dude. He became a frequent visitor to our room and brightened each day.

I was determined that 2015 would be the year of my cure. The egomaniac doc on call insinuated the 9 day stay had been a waste of time because he didn’t find anything helpful. He was wrong. My cure is life.

What I found is that I can survive anything as long as I have my friends and family surrounding me with prayers and love in action. 2016 is my year for living fully with epilepsy. In just a few weeks I can drive again. Although with all these new roads I’m likely to get lost a lot, but I will crank up my music and enjoy the scenery as I attempt to find my way. I’m looking for a job. I want to love on people the way I loved on my Grandmother and the way others have loved on me. I have learned what fills my joy tank. I’m working on gaining confidence after being out of the working world for 8 years. I’m diligently finding time to spend with my son who is ready to leave our nest. I pray he is ready, confident and will be successful. He is ready to let his wings soar and I hope the world is ready for him!

My husband, my dedicated, committed, overall-wearing, yes we did just wrap plastic around our screen porch like our grandparents did…we celebrated 20 years of marriage this year. We had a week in Florida by ourselves for the first time since we got married! We made memories to last another 20 years…so you know who, can you mark us down for another week at your house in 20 years? He has held me when I cried, he has listened to me scream, he has encouraged me when I was in the depths and he has assured me that no matter how this or anything else changes me, he will never leave me. He cured every insecurity I may have. 2015 was a year of curing.

I emotionally look to this year with my son leaving but it does not escape me that I am blessed that our son will move on to college and we are here to see it. We lost some special friends and family this year, some of whom had a huge impact on our lives. They taught us to live in the moment, live without regret and take every opportunity that comes our way. They also taught us to give of ourselves what we can and indeed that is what I intend to do. Today is January 4, I think, and though it is way too quiet in my house, and I’m sitting at the window waiting for my son’s truck to come down the driveway, my life is so full of things I could never have imagined would be so over the top fantastic. Regardless of what the doc said, I found that for which I was looking. #livelifefullyn2016

Copyright © Gatewood Campbell, January 2016

Life is Good

I exhaled yesterday and inhaled a new breath of peace and tranquility. This past year has been one full of seizures, tests, 9 days in the hospital with tests and this past week 4 more days of testing. I did not realize how this constant calendar waiting for the next test, waiting for the results and what might be around the corner has kept me wound up like a stretched out slinky needing to be set free in order to regain its proper shape.

Yesterday I finished a 4 day EEG that was done at home. I managed to hide all the wires and my battery pack and attempt to go about my routine as best I could. The wonderful nurse who removed my leads had also been my nurse in the hospital. She remembered me…the name of course. She was again so kind, so gentle and had a sense of humor about the whole process. She was encouraging, and she did a fantastic job of removing the leads without stripping my head of hair. Bonus!

I got home and with my head still wrapped in acetone that was breaking down the glue I fell asleep for at least 2 hours. I woke up and felt a relief that I have not felt in a very long time. It has been close to 2 years since this roller coaster began and though it is not over, God has given me peace and knowledge that He has got my back. I have known that, I have told myself that, but now I feel it. We are human, and we always try to do all that we humanly can to be smart, be in the game and be on our toes. My family and I have done that, largely with the support of our community, both near and far, that provided tangible needs and prayer to carry us. But when I woke up I almost could hear God saying “I got this”.

Psalm 103:2-5 says “Praise the LORD, O my soul, and forget not all His benefits. He forgives all your sin; He heals all your diseases. He redeems your life from the pit and crowns you with love and compassion, who satisfies your desires with good things so that your youth is renewed like the eagle’s.” This verse really speaks to how I feel now. Healing comes in all forms and I must remind myself of that. He has showered me with His love and the outpouring of love from our friends and our family. Though I am limited in some ways, there are many ways in which my youth is renewed because of so many good things.

As we look around it is easy to throw up our hands and give up. So much senseless agony, sadness and despair. But as we throw our hands up we must also point to the giver of life and welcome Him in our lives as our healer, comforter and provider…our Savior. I don’t have all the answers and certainly don’t claim to. I watched my Grandmother welcome death because she knew life was on the other side. I watched our dear friend Will Terry die and he did not fight it because he too, knew Jesus was on the other side. Life can be long in years but when death comes it can feel so short. We must embrace each moment as if it were the last. Our Lord will give us love and compassion as we turn to Him.

As a mom, I sit back and watch my children grow. I don’t like saying good bye to them in the mornings because I miss them every minute that they are gone. This is our last year with our oldest. He has been busy applying to colleges, and THANK YOU LORD, he was persistent and got the apps in early so the pressure is off. We trust that acceptances and opportunities will come that God has already sifted through. We know that he will look to God for the answer as to where he should go and for that we are thankful. Opportunities that we never dreamed have come his way for him to increase his musical skills and we are proud and thankful to God for His guidance.

Our youngest, well, for those that know him, he is still himself without apologies. He keeps us on our toes, but I am thankful for that sometimes aimless personality, and we are thankful that he knows when to reign it in a bit and when to let loose. He reminds us that life should be lived minute to minute and to embrace each minute. His laugh is contagious, even when I can’t understand a word he is saying because he is laughing so hard, we just all laugh together.

My husband, the rock of our family, the solid foundation upon which we have built our 20 years of marriage and raised 2 incredible boys. God blessed me.

For the first time in a very long time I feel good. I have a home filled with love, gratitude and warmth. We are surrounded by an incredible community of help and prayer. I have left no stone unturned in our search for answers and I find great peace in that, although the battle was really never mine. God has always had my back. God refines each of us with many different methods. I am glad He loves me enough to refine me. I pray He will find me like gold as I call upon His name.

Copyright © Gatewood Campbell, November 2015

 

NIMBY…Newsflash…Mental Health Issues Are Already on Your Front Porch

Soapbox alert! This topic gets under my skin in ways that I can not describe. I have made brief mentions of this on Facebook but it is time to speak about the bigger picture.

I’m an avid news reader. I’m curious about the world, our country, our state and my local neighborhood. Reading the news is a catch 22. You can keep up with current info which about 10% of the time is good news and 90% of the time is bad news. Often the bad news simply disgusts me but bad news is all around us and we have to pay attention to it.

Several years ago my town was embroiled in a heavy battle of the NIMBY, the Not In My Back Yard, mentality vs the need for accessibility, the availability of land and the potential for economic growth. I won’t even start on the potential to employ locals. Unfortunately a neighborhood of shortsighted people garnered enough attention to sway the powers to keep a well planned facility from being built in Huntersville. Huntersville had a perfect piece of land that was previously occupied by hospital and later by a nursing facility. It was on a road along the main CATS route, thus offering ample opportunity for employment by those with transportation and those without. There was a neighborhood next to the property and they formed committees, contacted media and waged outright war on the plans to help those in need. Their main call to action was Not In My Back Yard. The neighborhood felt they won. Unfortunately, those in need lost. Thankfully, the Town of Davidson saw the bigger picture and embraced a beautifully built facility to bring those suffering from mental health issues to find healing. I watched the facility finally rise from the soil near Davidson and now pass by it and I anxiously wait for the day I can drive. I have dreamed of volunteering there. I want to be available to refill kleenex, keep hot coffee ready, keep cold water ready or perhaps be a smile to the faces of desperation that come through the door. I don’t need to know why you have come through the door but people walking in the doors of a mental health facility deserve the best our world can offer. When we embrace those seeking help and the family members in despair we bring positivity to our community and send better equipped people back into our neighborhoods.

Newsflash! Mental health issues and difficulties are not in your backyard. They are on the front porches of everyone in America. Pick up the old-fashioned method of news called a newspaper, click on CNN, click on your local news or read the updates from our local schools. Our country is overwhelmed by people who suffer from various forms of mental health difficulties and because help is not readily available to them nor to their families, we all suffer.  Sure, some are of their own doing, but some are not. These issues stem from a world that does not offer enough opportunities to understand those that don’t suit “our” standard of normal. My question is this; when might we ALL understand that we can ALL be part of the solution instead of just dumping other people’s issues on themselves and essentially saying “figure it out for yourself”.

A bit of history about why this stirs my pot. My Grandfather was the smartest, most gentle and most patient man I have ever known. He was ordained as a Minister in the Methodist Church, served as Chaplain in the Navy during WWII and until his retirement was the Chair of the Psychology Department at Davidson College. He was part of the call to action in NC to license psychologists. He was in line to hold license #1, but as his life displayed an intense love of respect for others, he stepped aside in this historic time and asked that a woman hold license #1 and he held license #2, issued on June 19, 1968. In the Navy he was on an unarmed vessel, the USS Granville, that served our country by bringing the injured home for recovery. He was also charged with meeting with families and giving them the horrific news that their beloved had suffered fatal injuries while fighting in the name of the United States of America. I will never claim to even be able to imagine the pain and suffering he saw and how these experiences shaped the man he became. He taught by example that we should always, always put others first and help others where possible. During his time at Davidson College, he caught wind of needs at Broughton Hospital. He volunteered his summers at Broughton to relieve the Chaplain of the incredibly difficult responsibilities of a minister serving at a mental health facility. He and my grandmother spent many summers at Broughton, accepted no pay, but for the joy that he could fulfill a need and thus give rest to someone dedicating themselves to helping those suffering from mental health disorders. I would sum up my Grandfather in two 4-letter words: GIVE and LOVE. He gave himself in as many ways as possible because he loved ALL.

My Grandfather suffered several strokes before he died in 1995. God showed him mercy and he only lived about 6 months after suffering life altering strokes but those months gave me insight that shaped my mind and heart until this day. He never bragged about anything he did, and found it difficult to receive any accolades for what I call his ministry through psychology. I visited him frequently after his strokes. Sometimes he knew me but usually he thought I was one of his sisters. I enjoyed venturing back into time and playing the role of “sisters Libby and Martha” and learning even more about this quiet little man of tremendous faith and strength. One early evening I was sitting with him in his room on the second floor of The Pines in the nursing unit. I had helped him eat dinner and afterwards I propped up on his bed and he sat in his wheelchair while we watched/listened to Jeopardy. A commercial came on. At the end of the commercial the narrator said “If you don’t get help here, please get help somewhere”. He perked up from his slouched position and said “Exactly!” I shook my head in confusion because I had not paid attention to the commercial. I asked what he was talking about. The professor, the psychologist, the minister and the lover of people went on to explain in great detail that people need help for a variety of reasons. He liked this commercial because it did not necessarily promote their facility but in fact it promoted encouraging people to get help somewhere. This man with whom I had sat for months was still in there. His understanding of mental health issues was the heart of his heartbeat. In that one conversation I realized that he had seen and understood far more about mental health disorders than I would ever know. In his last months he still believed that everyone had the right to help. He was right on target!

Over the last few weeks a neighboring county has been gaining attention fighting another Mental Health Hospital. Yet again, the headline was NIMBY. I sighed in anger and disgust. I shudder at the thought of fighting an opportunity for healing. I scrolled on and saw various headlines and began to see a pattern. The overwhelming bad news seemed to have a clear connection. Untreated mental health issues are negatively affecting every single one of us! No, we don’t need to worry about mental health disorders being in our back yard because far too often the problem of untreated mental health disorders ends up on the front porch of all of our homes! We all should accept some of the blame for not being willing to welcome facilities that offer help to those in need and to their families. We have become so short-sighted in our own needs that we can’t see the bigger picture and grasp the full color version that when we extend a helping hand, and welcome people into our backyard we bring a light of hope to our front porch.

I was in my 11-year-old’s room yesterday and saw a project he was working on about anti-bullying. Just a few hours later I saw adults engaged in social media bullying regarding politics. When I shook my head it was as if all the puzzle pieces fell into place. We are in a new age where we speak our mind behind a computer and in fact we are adults bullying adults. Now we are waging a horrific battle against bullying in our middle and high schools. I place the blame on our own shoulders. We have spent far too much time pushing off other people’s issues on themselves, not willing to spend some time helping our neighbors and now it has filtered down into kids barely into double digits. This makes me sick to my stomach.

This might be the most disjointed blog I have ever written, but my fingers can not keep up with my head. We have come to a place where we are focused on kids bullying kids. What example have they followed? You tell me. We have not exercised the proper example by helping others and instead our communities have become a people who wants to fight others and send them off on their own. Far too often we no longer seek to understand and shun the opportunity to join hands and be the helping, giving, loving people whom God intended.

Mental health disorders, illnesses and difficulties permeate our society. If we focused the same attention on fighting for help to be in our back yard and instead focused on how our back yard can help, where might we be? Maybe I would not find my 11 year old trying to fight the bullying that is simply taught by adults. How can we be actively in our community, loving, giving and helping our neighbors live a better life? I wonder where we might be if we all concentrated our efforts on understanding each other and the all-encompassing thoughts that might change? We are all from different backgrounds, stories and battles. I absolutely believe we can turn them into the positive but it takes a community effort to accept this is on our front porch.

If you walk away from one message in this blog, please think about how we can embrace those in need, those with differing needs from our own and how the dominos can line up to change the future for the next generation. You or I may hold the key to understanding the mental health needs of someone we know or someone we do not know that may change the future of someone we love. Step out…GIVE…LOVE and listen. Stop the NIMBY philosophy and be active in the solution.

Copyright © Gatewood Campbell, October 2015

Ten and Then…

Ten years ago my doctor uttered the word epilepsy to me. We were glad to know what we were dealing with, but dealing has not always been easy. I look back on those six or so years I was seizure free and I long for those days again. I remain hopeful it will happen. I haven’t given up hope that a cure will one day be found for the millions of people suffering from the invisible disease.

Epilepsy and then what? Well, I discovered I wasn’t cut out for a career anymore but I was still cut out to be a wife and a mom. We set aside other goals and ambitions and small things like waking up each day with time to cook breakfast for Johnny and the boys before work and school became a joy. I love being able to hug their necks when they leave and being home and see their eyeballs when they come home in the afternoon. I will always remember the excitement Justin had when he was in the 3rd grade and we told him he didn’t have to go to after school care anymore! He was over the moon! He is a senior now and this time next year he will have left our nest. It makes my heart sing to have these years with the children. Epilepsy gifted us this time. It has given me far more than it can ever take.

Ten years later and then what? Well, I will survive the humps in the road. I can look back and see that now. This current hurdle will pass. My children are smarter from learning about this disease and being more aware of the people around them, their struggles and their victories. We survive because love always wins. When love is the heartbeat of a family, family wins.

Ten years past, and in ten more years you can ask me again. Then what? I will tell you again, I’m still winning.

Copyright © Gatewood Campbell, September 2015