Some things seem too familiar, or maybe not. It has been over a year since my last seizure and perhaps I wasn’t quick enough to recognize the aura.
Several weeks ago I headed into the store for a quick pickup of ingredients to make chili. As I got to the back of the store something felt wrong. In my circus head I thought I would crush my phone in my back pocket if I went down. I placed my phone in my pocketbook and moved on. The sensation continued and I realized I had my glasses on so I placed those in the hard case and put them in my pocketbook too. I got to the sour cream and it was shaking everywhere. Determined, I tried yoga breathing. The shaking subsided and I grabbed the fat free sour cream. Feeling like I had this, I pushed my cart to the cheese section. Problem was that I could not walk steadily. So in my constant attempts to “do it my own self” (something I told my grandparents when I was about 5 years old) I bent over the buggy and threw my head into the basket. Self said to me “this is highly embarrassing so get up and walk.” I stood up and grabbed the handles again. Nope, not steady. I sat down on top of the cheese. Yes, on top of the cheese. I realized I needed to take an emergency seizure pill. As I sat ON the cheese I could see bottled water and thought I could dash over and grab a bottle, open it and pay for it when I left. I stood up. Then I doubled over inside the basket again. Well dang. Walking was out. I sat back down on the cheese. I threw the pill as far back in my throat as I could and gobbled it down. AHHH DANG! This is not good. I looked around for someone to call to. All I heard was spanish.
“You are ok. We are taking care of you. You had a seizure and you are going to be ok.”
I looked past the man speaking to me and into the bright round lights shining down on me. I realized I was strapped to a gurney and prepped to be moved to the ambulance. Well dang, really?? I just wanted to make chili. My mind wandered to my buggy with ground turkey, tomatoes, sour cream and oh yea, no cheese. I never picked that up. Ouch, my head hurt no matter which way I moved and my legs were barking!
“Hey I know that truck.” I was in the ambulance and I recognized my husband’s truck pulling into the lot. I told the medics my husband was here. I was overwhelmed with beeping and voices. What I wanted was to go home! Johnny came running to the back of the ambulance and told them I had epilepsy and he would take care of me.
Fortunately, I did not bust my head open and the medics released me into the loving care of my husband and our youngest son. Apparently he was in the backseat of the truck. I don’t remember. Some wonderful friends happened to be nearby and went back to pick up my van and get some more Tylenol. The smallest things mean the most.
It is what it is. Maybe I felt safe. I am safe, when I am careful and when I don’t overload myself. Epilepsy is a silent disorder. It is invisible. It strikes when we think it may and also when we least expect it, or when it is least convenient. I can not believe the stoic manner in which my husband is always able to cope with this. My children do not fear seizures but they are all too aware. Our youngest was in a class when he saw his dad come around the corner before class was over. Later he told me he figured something had happened to his mom. He wasn’t worried. He is always confident that someone will be there.
Turns out care was at my side within seconds. A friend witnessed the event but because I was already on the ground she didn’t realize it was me. I am thankful that she asked shoppers to move along and comforted to know that she saw the employees had called 911 before she had the chance.
You know what? This too shall pass. I have spent the last 11 years fighting this and I have no reason to think that it will ever beat me. Yes, I am dealing with reality that I wish I were not, but it certainly could be worse. Can you help? YES! Learn how to aid someone having a seizure.
The most important thing I need after a seizure is to know someone is in control and cares. If you can be that person who looks into the eyes of someone coming out of a seizure and communicate love and care, you are a hero.
I am fortunate. I am a survivor. There is still no cure for epilepsy but millions of us fight it with the help of loving care around us. November is Epilepsy Awareness Month. Please take a few minutes to read, re-read and share first aid for seizures information. Knowledge is power and power saves lives.
Copyright © Gatewood Campbell, November 2016
You have so many angels.
Thank you Pam!
I was at Lululemon in Southpark a few months ago, and as I came out of the dressing room, I saw an employee having a seizure. Her coworkers were so surprised and didn’t know what to do. Because of you and a student I had years ago, i knew what to do and was able to help the lady by putting her on her side until the seizure was over. It made feel so good to be able to help her.
Mari I am so glad you were there and knew what to do!