Almost There, But I Wouldn’t Change What I Learned

I’m wrapping up two weeks of vacation in my favorite place on earth. My family has had laughter, rest, time to catch up with family and best friends and a lot of good food while we celebrate the 4th of July and then some.

As these last few weeks have passed I have thought about the first few days since December 2nd when Mom started her cancer treatment and I pushed the button to wait to cross the street on Morehead and woke up later in the ER. I could not have dreamed the scenario that would unfold. Goodness, it seems like years ago. Months later, Mom is so healthy now. She is strong, full of life, and full of strong blood cells!! I too am much stronger, shaken, but stronger, deep down, in ways people can not see, in ways you can not touch, but in ways that I know I can reach when in need.

I have learned that God is there, always listening, my partner in everything, ready, always on call, in ways I did not fully recognize previously. In my loneliness He can comfort, in my weakness He is my strength, when I am dizzy, He straightens my path, when my words are lacking, He finds them, when my days are too long, He gives me rest, when confusion is too much, He gives me my husband, my sons, my Mom or my best friend to explain on my behalf, when danger may linger, He sends a stranger to call for help, when in need, He has surrounded us with a crowd of sacrificial friends willing to help with rides, food and anything else we have needed. God IS our provider, in every sense of the word.

I have missed my Grandmother and thought of her every single day since she died. Many of those days have felt like my life was spinning out of control and yet I was glad she wasn’t here because I knew it would be too painful for her to be here and see the pain our family was going through. It made me thankful again that God took her when He did to relieve her of that burden. God is so good. Just another reminder of how He has comforted me even through death.

I still have 5 days before I can hold the keys to the car in my hands again and I am cautious as I wait for that day. I know anything can happen between now and then. The difference is, if it’s bad, it will suck, we will survive, as a family, with the help of our extended family, because our God will carry us through anything we ask Him to help us through. I’m still processing the reality that I will deal with epilepsy and the possibility of seizures for the rest of my life, but I will continue to use my filter-less mouth to bring as much awareness to this disorder as I can. There has to be purpose in this brain trauma somewhere, right???

So if you had not been able to drive yourself anywhere for 7 months where might be the first place you would go? Good question right? I have several doctor appointments next week…boring. My oldest needs supplies for his upcoming mission trip…big stores and I don’t have a good record, plus he has to do that with me. We need groceries…boring. Well, just so happens I have an amazing brother and sister in law who keep me stocked in massage gift cards! SCORE! I have already booked a Wednesday morning massage! What better place to drive for my first day out, right? A little pampering for me! Yay for my awesome bro and sis in law who know how to spoil me! Can’t wait!

I wish I could thank everyone that has helped us but I know I would forget someone and I have a terrible fear of leaving people out. So please know that if you have helped us in any way, you have been prayed for because of the gift you gave our family. You made what could have been a horrible 7 months much easier for all of us. Thank you, thank you, thank you.

© Gatewood Campbell, July 2014

Finding It

I am allowing myself to count, or at least I am telling you I am counting. I can see the end of this trial. I am no longer counting in weeks but I am counting in days. We have had so many countdowns going on around here with the end of EOGs, EOCs, exams, school, leaving for camp, Montreat, Justin’s 16th birthday and when Mom can drive. It has been hard to keep up with which countdown we are discussing! One thing is certain, my quiet house is suddenly full of voices and that makes me so happy.

I have had a LOT of time to digest the changes to our lives that epilepsy and brain injury brought me. Some days felt like forever. Justin had to get up at 5:25 for school. Yes, it is insane. Then round two starts at 6:45. Then it is just the dogs and me until 3pm. For several months I couldn’t work out and honestly I just slept most of the day. I was so drugged up playing with so many medications I didn’t know which end was up waiting until July felt like eternity. Mom was sick, I couldn’t help her. I couldn’t even grasp how she was because I couldn’t get to her and I was angry. I hated being dependent on people every time I needed to go anywhere. I felt so much pressure to have my act completely together anytime I asked anyone for anything because I knew I was already inconveniencing someone and I didn’t want to be any extra trouble.

You do not know what real freedom is until you don’t have it anymore. Truly, there were days, 3 or 4 in a row where I did not leave the house. Sure I walked the dogs. But days that I did not get in the car, did not have the need to, as Emmer would say “put myself together” and get out. I know how she felt those last years when she was stuck in her room in healthcare and she didn’t know what day it was. Were it not for the kids coming home at 3pm the beds wouldn’t have been made and I probably wouldn’t have showered. Everyday, by 3pm, the house was presentable and I was at least physically presentable. Some days were wonderful, some were normal, some were sad, some were dark and desperate. I had never faced the reality that I will live with epilepsy and seizures for the rest of my life. I always planned that we would control it with medicine and I wouldn’t have to worry with it. That is the most likely case, but I do need to be prepared for the possibility that may not happen. There is always the chance that I will have more seizures and be back in this same place again. Mentally I needed to swallow that big pill, along with another 5 or so. I have seen that I can do this. If I have a seizure tomorrow and the clock restarts we will all deal with what comes our way. Our Lord is ever faithful. He has shown me that, day in and day out. When I was on my knees in prayer and when I was on my knees in tears. He was, is and will be faithful.

The little things have meant so much. People have called and made time to take me to lunch. Those were days I really looked forward to. I got to put myself together! I have a couple of special friends that would drop notes in the mail every so often just to say hello and they were thinking of me. Those notes always arrived on days that I needed a little extra hug. To me, weekly rides for the kids were huge, but the people providing them say they were little so I’ll call them little. These little rides home from Chess Club, baseball practice and games, church, small group, drum lessons, play dates, sleepovers, I could go on and on. Several people have taken on my kids for this entire seven months and are transporting them where they need to be on a weekly basis. They show up without reminders and it means all the world to me. These adults willing to go out of their way mean our kids don’t have to sacrifice something they enjoy because of my health. As parents you all know what that means to us. These are the things I remember…quiet acts of kindness.

Getting moving again. This was a hard one. The doctor wouldn’t let me work out for some time after my seizures. Then she let me slowly begin walking and lifting weights on a modified routine. Anyone who has worked out on any level of intensity knows that you lose it very quickly. I had run a half marathon in mid November and my first seizure was Dec 2nd. By the time I was finally allowed to work out in March I was up more than a few pounds and down more than a few levels of strength and endurance. Frustrated to say the very least! I didn’t want to run with anyone because I was too slow. People at the gym were generous when my instructor told the class about my situation and I had many offers for rides to class. So I followed the rules with weights and began to see progress there. This running thing, this was a different beast. I had been walking so I thought I would be able to run without too much trouble. One stinking mile. Tears tears tears. I felt so pathetic. The road has been my go to for years now. It’s my zone and if ever I needed a zone it was now. If I can’t have running this is just not gonna work for me. I felt so defeated. For weeks I would try to go out and run. Sometimes I would manage a couple, maybe 3 miles, other days hardly 1. I would try consoling myself by saying at least I was doing it. I wasn’t consoled. I felt robbed. It would take me back to that angry place again, angry that this epilepsy had stolen something else from me. Then, in those moments He would speak to me, through the lyrics to music.

“I don’t know where to go from here. As long as I know that You are near. I’m done fighting. I’m finally letting go. I will trust in You. You’ve never failed before. I will trust in You. If there’s a road I should walk Help me find it. If I need to be still, Give me peace for the moment. Whatever Your will, Can you help me find it? I’m giving You fear and You give faith. I’m giving you doubt. You give me grace. For every step I’ve never been alone. Even when it hurts, You’ll have Your way. Even in the valley I will say, with every breath You’ve never let me go. I will wait for You. You’ve never failed before. I will wait for You.” By Sidewalk Prophets “Help Me Find It”

My “It”. I needed to swallow epilepsy and own it. I finally felt like I could say without so much embarrassment that I have epilepsy. I’m a Mom and I am at home with my family. And the rest is really none of your business. No I can’t really say that, but I can say it in my head until I think of something a little snazzier. I am proud of my family and I am fortunate and blessed to be with my children everyday! Now God knows I love the road and I believed He wanted me to have that freedom again.

My sweet niece in Colorado called me in early spring to tell me she wanted to run the Bolder Boulder. It’s a huge Memorial Day attraction founded by Olympian Frank Shorter in 1979. The race ends in the University of Colorado’s Folsom Field with the Finish Line on the big screen for added excitement! She told me she and her entire family were running the race together. This was my “It”! My mind was racing. I was not letting my brother and his whole family do this without me! I called my best friend, Sharon. She was the person who asked me to run a half marathon with her way back in 2005. I knew she wouldn’t turn me down. I asked her to fly to CO with me and run a 10K. I’m pretty sure she didn’t even ask me when it was before she said she would go. Next, Mom. Of course she would go. I called my brother and asked if he could make room for 3 more people that weekend. No problem! I had my goal and I had a couple of months to get ready for 6 miles. I hadn’t run more than 3 miles but I was certain I would be able to do this.

Fast forward to Memorial Day weekend. I had some really bad runs and one really good 4 mile getting ready for the race. I had some great workouts and one right before the race that I had to completely bail on where the people at the gym said I looked dazed and confused. That’s always reassuring. I was so anxious leading up to the race, it was ridiculous. I was afraid to be away from home. I have been home SO much that I’m actually uncomfortable leaving home now. That’s another issue I have to deal with too. Anyway, my prayer warriors were at work and I knew God is faithful. I knew He had not failed me. I knew I needed to step outside of my comfort zone in order to feel His power rain down on me.  Well, guess what? Elevation did not bother us, lack of training did not bother me. I smiled and then I cried like a baby after crossing the finish. I took it all in and looked to the heavens, feeling like I was just a little closer standing there at the base of the Flat Irons. I thanked God for His faithfulness before, during and now. I closed my eyes and the months flashed by and I felt the ground beneath me and I was so grateful for the road I had traveled to cross that finish line. I had given Him fear and doubt and He gave me faith and grace. For every step I was never alone. Indeed He helped me find It. I just needed to rekindle my love with Him.

That's me in the pink! I found my It at the Finish!

That’s me in the pink! I found my It at the Finish!

So officially it is only 34 days until I get the keys back. I feel like I need a refresher course to hit these crazy roads first. I also wonder where I will go? Isn’t that funny? All these months of being at home and learning to consolidate trips to now I wonder where I might need to go? Thank you for being part of this journey with me. For supporting me by reading my posts and giving my an outlet for the crazy thoughts that wonder around in my silly little mind. I hope I give you some laughs, some insight into life that is different from your own and maybe a little bit of something to chew on for another day.

© Gatewood Campbell, June 2014

 

 

In Memory of Emmer, August 28, 1915 – January 15, 2013

She was my Grandmother, my confidant, my best friend.
She was our matriarch, the queen of our castle, the caller of the shots.
She was my link to our past, my purpose in our present and my hope for our future.
She was a quiet strength and calm in any storm.
She loved a long dinner with her special friends.
She loved to play bridge, and she really loved winning the pot.
She loved fine classical music.
She loved to read good books.
She loved to learn.
She read the newspaper cover to cover everyday.
She never took for granted her right to vote and she never missed voting in an election, local or national.
She loved a good manicure with clear nail polish, because one should never call too much attention to themselves.
She loved a glass of wine in the afternoon.
She loved cheese biscuits.
She loved Hershey’s chocolate nuggets.
She loved coffee ice cream with caramel sauce on top.
She loved homegrown tomato sandwiches with mayo on thin white bread.
She loved salmon colored geraniums on her porch in the summer.
She loved to laugh until she cried.
She told you what she thought, yes indeed, she always told you what she thought.
Sometimes she didn’t tell you, she just groaned her opinion, and that was all it took.
She believed a lady should always be prepared to host guests.
She believed in the value of the past and the power of the future.
She believed tomorrow would always be better than today.
She taught by example.
She taught me the importance of a proper handshake.
She taught my boys how to properly make up a bed with hospital corners.
She taught my boys to pull out a chair and assist women as they are seated.
She taught them the manners of waiting to sit until all the women were seated.
She taught them never to eat until she had raised her fork at the dinner table.
She taught me to look past the outside and peer into the more valuable inside.
She taught me to speak less and listen more.
Her selflessness was limitless.
Her determination was unstoppable.
Her strength was constant.
Her grace and kindness had power that she never understood.
She said she was just herself, yet everyone else saw so much more.
Her eyes and her emotions told stories words could not tell.
She loved her family with every ounce of herself and then some.
My life, and the lives of all who knew her are forever better having known her.
She was exceptional, though she didn’t think so.
She was just herself, nothing more and nothing less.
Plain and simple and absolutely exceptional.
Our love extends beyond the grave.
We miss her every single day.
Our eyes still fill with tears when we talk about her, but the tears flow more from laughter rather than pain.
She is with her groom, her mama (whom she brought into her own home and cared for almost until her passing) a brother who died too early for her to know and her Lord.
She would not come back if she could.
She’s home.

Copyright © Gatewood Campbell, January 2014

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Returning Thanks

I have been enjoying reading thankful posts from my friends during November. Each day I have thought of something for which I am grateful. November is Epilepsy Awareness Month and our family has been busy participating and I have not slowed down enough to write down so many things for which I am thankful. So here goes…

Blessed with Much, Thankful for Much and Eternally Molded by Much.
This Thanksgiving I am thankful for
The promise of eternity in heaven with my Lord and Savior;
our warm home;
food to eat;
clothing for my family;
my husband, my children and all the ways they generously love me;
my mother, my grandmother and the combination of the two that I have become;
my brother and my sister in law that love me in all the right moments;
my mother and father in law who love without ceasing, in word and in deed;
mercy and grace from God and those close to me;
friends that love me without judgement;
my Mother’s friends that love me as their own;
teachers that understand boys;
The Pines staff that loved my Emmer as their own;
Montreat, all that she was, is, will be and all those that come along with her;
the beach that teaches me to release my burdens with the tide;
driving by myself;
the ability to run and the ability to pay it forward;
the ability to understand the misunderstood;
the color purple and all who proudly wear it;
the power of fearless sharing;
kind words and smiles from strangers;
random acts of kindness;
patience from a sales clerk;
family traditions;
making new memories;
and a concussion that changed our lives forever.

© Copyright Gatewood Campbell, November 2013

Walking on Two Again

For the last 25 years I have been a three legged woman. I have walked with my Grandmother and my Mom. I resemble them, in looks, in speech and in manner. All of it makes Johnny tremble, with a bit of fear and a lot of laughter. That is the way we do it. We laugh and we press on.

Thanksgiving is a week away. The Workman clan won’t be at the corner window table devouring delectable dishes from The Pines this Thanksgiving. We are plunging into muddy waters that are unknown and feel a bit frigid. This is uncomfortable. Crazy indeed, but I miss the anxiety created by Holidays. My Grandmother always pretended the Holidays made her more nervous than joyful, but I know the truth.  She loved each Holiday and awaiting the arrival (yes I was always late and Mom was always early) of our family and watching the boys devour an embarrassing amount of food from the buffet. She loved watching the choices my children made and she encouraged them to treat themselves to two desserts on Holidays. The grits were always their favorite; I think it was the heavy cream. She ate like a bird so she could take in every moment of those memorable meals.

For so many years Mom, Emmer and I were the three legged human. Sometimes I think we were more like a kangaroo where two feet did the work while one was carried in the pouch. We took turns being the Mother of us all. Though I will say my Grandfather coined the phrase “mother of us all” when referencing me in his genealogy some 30 years ago. Brilliant man!

There is no pouch anymore. There are two legs now and we have to walk.  Emmer taught us well. She trained us well.  I trust she delights in her own humor and spirit that Mom and I display. I am not walking alone. We demonstrate the sincerity, the determination and the (sometimes brutal) honesty that my Grandmother taught us both. This Thanksgiving I will walk on two legs, sometimes one of mine and one of Mom’s and sometimes just my own. Regardless they bare the weight of life lessons that make me the person I am today.

I miss her deeply. In the end, I am grateful, for Emmer, that she has finally found her resting place. I will forever treasure my years of loving her, laughing with her, crying with her and learning from her. Enjoy your Thanksgiving at home Emmer. We love you and we miss you. Above all, this Thanksgiving, I am thankful for you.

© Copyright Gatewood Campbell, November 2013