Category Archives: Epilepsy

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Erasing Expectations, Embracing Grace

September was a notable month for me this year. It marked my 40th birthday, which was celebrated in grand style with some wonderful friends. I felt so loved…so unbelievably surrounded by love. Late September is also the anniversary of my first grand mal seizure which eventually, and quite frankly, thankfully, led to my epilepsy diagnosis. It’s a date fixated in my memory with visions of looking across a store and looking at my 2-year-old. Everything inside me was screaming for help, for my son and for myself. I had no clue what was about to occur, I just knew something was terribly wrong and I needed someone to help us. I awoke to a sore arm where I landed on a clothes rack, another huge bump on my head and a bleeding tongue. I had the pleasure of one more escorted ride to the ER.

Eight years. It seems like an eternity and yet it seems like yesterday. I have had a hard time with this 40 thing. I’m so far from where I thought I would be at 40. Ten years ago I was pregnant, well actually about to blow a major-gasket-size pregnant, with our second child. We knew he would be our last, because hell hath no fury like a woman who has thrown up everyday for 9 consecutive months. This one was it! In my mind I was ready to settle down with our two children, adjust to a change in jobs at CAT for Johnny and find my niche in my own career at the church which was experiencing growth in monumental proportion. My plan went smoothly for a couple of years.

And then God reminded us all that He, and only He is in control of our lives. In the blessings, in the joy and in the abundance, we forget to run to Him. We forget to ask Him to guide us, to ask Him to forgive us and to ask Him everyday to be the light in our lives and let us reflect His life saving light. I had forgotten that God gave me breath, that He chose Johnny and me to raise Justin and Hunter. I had forgotten to thank Him each day for my husband, my children, my home, provisions for all of us and most importantly for sending His son Jesus for me. He knocked me off my feet so I would draw near to Him as my comfortable world around me crumbled. I guess the first time didn’t work, so He tried a second time to get my full attention.

Last week as I was running I passed a church, well actually I passed 6 churches on a one mile stretch of one road. You know you live in the heart of the south AND the Bible belt when there are 6 churches on one road within one mile. Seriously, if everyone joined forces can you imagine the power? Oh well, that is another topic for another day. Anyway, one of the churches had a marquee about the coming week’s sermon. It said “Erasing Expectations, Embracing Grace”. I ran past that marquee several times last week and each time it really struck a chord with me. My 40th birthday had me thinking about the expectations I had once had for myself. It had me thinking about my failures. My, my, my. Not once had I thought that perhaps I had accomplished the expectations God had for me. I was too fixated on what limitations I now have from my brain injury and from the epilepsy and where I might have been. I forgot that God brought me to this point in my life because He loves me. God gave me His grace to get me to this point and I had forgotten that my life is about fulfilling His plan, not my own. I have sinned in forgetting His grace surrounds me daily.

In 2 Corinthians 12, Paul writes about his thorn in the flesh and pleading with God to remove it. Some think Paul may have even been referencing epilepsy. I too have pleaded with God to remove my own thorn in the flesh. Just as God chose my husband for me, chose me as the Mother for Justin and Hunter, He chose me to have epilepsy. I never questioned the blessings of my husband or my children, yet I questioned epilepsy. Perhaps, God blessed me with epilepsy too? When Paul pleaded with God, God spoke to him and said in verse 9, “My grace is sufficient for you, for My strength is made perfect in weakness”. Well what a fool I have been! Paul reminds us that only in our weakness, our infirmities and our distresses is the almighty power of God displayed. God makes us weak so that we will trust Him, lean on Him, thank Him for our daily bread and our daily breath.

What if I wake up tomorrow with no expectations and just embraced the grace that God gave me to allow me another day? What if I face each day erasing my expectations and asking God for encounters with Him? It’s about perspective. Is the glass half empty, or is it half full? Is God part of my life, or is He my life…the source of my life?

“Trust in the Lord with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths.” Proverbs 3:5-6

© Copyright Gatewood Campbell, October 2013

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Changing Seasons

Here I sit, the last weekend of summer (before school starts). It marks the end of one season and the beginning of another. Part of me is beyond ready for some routine in our life, can I get an Amen from any other moms out there? Yet part of me remains anxious about the silence that will fall on my house at 7:30 on Monday morning and the demands that will arrive at 3pm Monday afternoon. 4th grade and 10th grade… more changes are coming, that’s for sure!

We have been incredibly blessed with an amazing summer. We had the chance to spend invaluable time with each other and relax in the places I love best. We started the summer with a Braves game on our way to a week of glorious weather at Rosemary Beach, FL. We came home just long enough to get the clothes clean and head to Montreat with my Mom and my brother’s family for a week. Ahhhh. Then home for long enough to get the clothes clean, ship Justin off to youth camp with church and then welcome our family from Germany for three weeks. Justin spent two weeks in Drivers Ed and in a couple of weeks will be ready to test for his permit. It’s been a busy summer but somehow restful.

And here we are. Justin spent this evening doing what he loves most; drumming in his room with his favorite tunes in his ears. Hunter is at church at a back to school lock-in and Johnny and I are watching the Braves battle the Cardinals. The kids are each finding their niche in life and watching them blossom makes a mama glow.

I’m still working to embrace the changes of 2013. It seems like forever and yet it seems like yesterday when this year began. I took a long break from running during the winter and spring. The road wasn’t calling my name as it had in the past. Thanks to some faithful, supportive and determined friends, I’m registered to run a half marathon in Savannah this fall. That is keeping me on a modified workout schedule at the gym and logging minimal mileage each week. It’s all good though. Savannah gives me a goal and something to keep me somewhat focused. If there is one thing I can count on, I will find my way to the finish line in Savannah, with my Mom (my faithful race cheerleader) waiting for me.

I’m learning to say “no” to the things that aren’t good for me and I’m finding people more receptive to my response. I’m learning to accept where I am, but I just haven’t figured out where I am going…yet. It will come, in time, I just have to be patient. Patience with myself, patience with medicine, patience with my future; it is all a frustrating process, but necessary for the payoff.

God is in the details. If there is one resounding theme I have seen this year, it is that God is in all the details. My children are finding their small niche in a big world, deer season is coming and Johnny is hopeful some large rubs will prove profitable and I’m trusting that if God has all that covered He has something waiting for me too. I am about to be 40. I am so far from where I once thought I would be at this stage in my life. I won’t lie, I am struggling with this but reminding myself daily that God’s plans are greater than mine.

Life will continue to bring changes, challenges and opportunities for victories. Seasons will continue to change and I will continue to age (some years better than others). My prayer is that with each changing season, with each challenge, I will recognize the opportunity to seize the victory.

I love Mandisa’s song “Overcomer”. http://m.youtube.com/watch?v=z29olPjFbqg&desktop_uri=%2Fwatch%3Fv%3Dz29olPjFbqg . Looking back on a season invested in family, looking back on a season of accepting many changes and looking forward to an unknown season, I want to overcome.

© Gatewood Campbell, August 2013

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Sometimes the Glass Really is Half Empty

I try, I really try to see every glass as half full, not half empty. A glass is round and when it is hit by something it bounces off in a completely different direction. It can’t be hit by the exact same thing in the exact same spot. So when I look at life as a glass half full, it is headed towards overflowing and by design it can not be penetrated. This keeps me moving forward, pressing on, determined not to be depleted or shattered.

But sometimes the water is full of air, full of bubbles that make it too cloudy to see through. Or the glass isn’t transparent so who would know if it really is half full or half empty? The glass can seem square shaped, making every pot shot bounce off and hit in the same spot repeatedly until it is broken. With a square glass holding cloudy water what do you do? If the glass isn’t transparent, you can’t press on enough to see through the glass, the battle is lost before it has begun.

Your normal is not my normal, or anyone else’s normal. Everyone has something unique that makes the definition of normal itself, unique. We each have something to conquer each day, something that has the ability and weight to sink us to depths that would drag a bobber to the bottom of the lake.

I have learned, well I am still learning, to live with epilepsy and a brain injury each day. I often wonder if it were just a brain injury, how would life be different? If it were just epilepsy, how would that be different? If my already injured brain weren’t dependent on medicine to limit seizures, what would be different? If I never had to go to Target that winter day in 2005, how would my life be different? Now, I know and I can list off in excess, the ways that my life has been enriched because of my circumstances. I will never ever deny the tremendous value of the experiences I have had or that my family has had due to my injuries. That walk in Target shaped my family into who we are today. There is much for which I am grateful and that enables me to see the glass half full.

Sometimes though, I just need to allow myself time to acknowledge there are consequences of my fall that just plain suck. I have yet to find a medicine, and I have certainly tried my fair share, that doesn’t have some side effect that over time becomes intolerable, either for me or for my family. I hate that I hate when the phone rings, because every nerve in my body flinches with fear because I’m about to be forced into a conversation that I did not initiate. I will be forced to try to decode my misfiring brain into words that may or may not communicate correctly. I will be asked questions that I need time to understand and to answer, yet the caller will expect quick responses, because that’s how a normal person responds. I hate that I cannot initiate a conversation of much merit because my brain is just a blank canvas without even a paintbrush. I enjoy watching my family laugh and scream on roller coasters, but I get tired of just walking from ride to ride and sitting at the end of the off ramp because I can’t ride with them. My family loves to watch a brilliant fireworks show, but I get bored holding my chin to my chest with my eyes closed. It’s frustrating to look in my closet and not understand how to put together a snazzy outfit that matches. (I’m so glad I have boys that aren’t dependent on female advice about fashion…I can not fathom the disastrous outfits that I would have put together for a girl.) It’s embarrassing to look at a teenage cashier and have to walk away leaving all my groceries on the conveyer belt because I’m confused by the sale price or the coupon or just the small talk they are genuinely trying to make with me. I feel horrible guilt when the boys’ teachers ask for volunteers and I don’t respond. I imagine them thinking “she doesn’t work, so she should have her hiney helping somewhere”. It’s embarrassing when I can’t understand the directions a 3rd grade teacher is giving for a game. It only gets worse when the kids try to explain and I still don’t understand. And my confidence hits rock bottom when the teacher tells the group of kids their leader has misguided them. When my son looks at his classmate and explains “she just doesn’t understand”, the fishing bobber has joined me at rock bottom. It’s humiliating to have to say no. I can not begin to put words to the demeaning feelings that overwhelm me when I have to say no to volunteering at my church. I, of all people know the need for volunteers and I should be first in line with a hand raised, but I can’t, I simply can’t. I know the need, but my role is as a seat filler now.

**Hold that thought….my phone alarm has just alerted me that it is time for a dose of medicine. If I hit snooze I may not remember to take my medicine later. I would like to continue with my train of thought, yet I am forced to stop….with a body dependent on a consistent dosing of medication that allows me to live my kind of normal. I can only hope to remember where I was in thought.**

Ok, I hope can resume regular programming now…

I share these things not because I am seeking sympathy. I don’t need sympathy because I know without a doubt that I have blessings that continually overflow. I share these things because sometimes I need to allow myself to vent and admit that there are some things that just suck. I have adapted. My entire family has adapted. That doesn’t mean that I have to like it all the time. My square glass has been leaking slowly for some time now. Maybe it finally shattered from relentless pot shots and the cloudy water has soaked my fingers and toes.

This season will pass and I will more fully accept and adapt to whatever circumstances come my way. The good news is that when a glass breaks, it is thrown away and replaced with a new one. We refill it with crystal clear water and the glass remains half full.

© Gatewood Campbell, August 2013

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About Me

It has taken me a long time to find the strength to update my bio without including my role as a granddaughter. I grasp the concept that my Grandmother no longer answers the phone when I call, but her voice, her wit, her style and her legacy are with me each day. My days with her changed my life forever and she would want me to use that for good, for myself and for others. So, here it is….the updated bio about me…

Call me a wife, call me a mom, call me a daughter and call me a friend. I’m closing in on 40 and have reached that point in life where we look back at where we thought life would take us, compare that to where we are and focus our sights on what is next. My future holds the fast paced life with a high schooler and a high energy elementary student. Our boys keep us expecting the unexpected with their love of life and desire to divert from the crowd and be themselves. I am one proud mama!

I’m self-sufficient, independent and I don’t like change. I prefer the organized to the unorganized and I like to have a plan. Ten years ago, with 2 beautiful boys, our family was complete. I was ready to take on the next chapter in my life. I made my health a priority and rid my body of an unnecessary 75 lbs. I had a goal, I had a plan and I lost the weight…and I have kept it off for 9 years. After that, I decided to run a half marathon. I had a goal, I had a plan, and I ran 13.1 miles. Ready for more of a challenge, I decided to run a full marathon. Goal, plan, 26.2 miles; done. Clearly there was a consistency in my approach to life. I moved on in my career too. I was finally developing and running my own programs. I felt like I was on the verge of really blossoming in every area of my life. And then…I had to run an errand for a project at work. I walked into Target, and was later taken out on a gurney. I slipped and fell in the store. My head suffered the impact of my fall. I woke up in the hospital. That was the first of several ambulance rides that year. That fall was over 8 years ago. The results of my errand to Target will stay with me for the rest of my life. I was diagnosed with a Mild Traumatic Brain Injury and eventually developed Post Traumatic Epilepsy, both due to a simple fall in the trashcan aisle.

Since then I have learned to live without a plan. I have learned to live with the unexpected. I have learned there is power in asking for help and there is power in accepting help. There is a greater power in taking the difficult experiences, turning them right side up and paying it forward in a positive way. I’ve learned that adjustment is a necessity. Since that day in Target, I walked away from my career and embraced a life that is full of all that matters most. I flow freely between wife, mom and daughter. I have completed 9 half marathons and 4 full marathons. Through many of those races I raised thousands of dollars to benefit the Leukemia and Lymphoma Society and the Epilepsy Therapy Project. I’m evolving into an advocate for epilepsy awareness by sharing my own experiences and learning from those who have been where I am.

I have a brain injury and I have epilepsy but they will never define me and they will not limit me from setting big goals. I have learned to adjust and I have learned to change. Change can be eternalIy powerful if we use it correctly. I have learned the positive value of embracing change and remind myself to be thankful everyday for the gift of seeing the sun in the sky and walking (even running) on my own two feet.

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© Gatewood Campbell, July 2013

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Anniversaries

Anniversaries… dates that we recall for some special reason. Typically I think we relate anniversaries to celebrations. Often they are attached to sad or traumatic events. Whether the occasion marks happiness or sadness I think it’s worthy of recognition.

As this week passed, the 5 month anniversary of my Grandmother’s death passed. As I look forward to the weekend our family will remember the 75th anniversary of my Grandparent’s wedding. For the last 17 years this date has passed and she could only look back to the years they spent together. This year, at long last, I find comfort and peace that on their Diamond Anniversary my dear Emmer and Weed are reunited. He has been gone for many years now, but she still talked of how she would awaken in the night and try to be quiet so she wouldn’t disturb Weed’s sleep. Then she would realize he wasn’t there. Night after night, month after month, for 17 long years, she never got used to living without her groom. This year, this special year, on their Diamond Anniversary, we can all celebrate that young love has been rediscovered.

After 5 months I still miss Emmer. I still think about her at 9:15 every morning and often reach for the phone to call and wake her up. Sometimes I replay saved voicemails so I can just hear her strong voice. I wonder who has taken her weekly Wednesday 10:30 hair appointment. In the same way that her daily routine revolved around what she was doing with me, my daily routine revolved around what I was doing with her.

Adjustments and a gracious learning curve…that is the gift I have given myself over the last 5 months. Emmer used to have a saying when anyone hit a bump in the road. “It’s not an arm or a leg so we move on” and she would sort of shrug her shoulders. I’ve repeated that to myself many times. I’ve wondered what she might say to me if she could speak to me now. You know, I think she would say the same exact thing. I haven’t lost an arm and I haven’t lost a leg (though sometimes it may have felt like it) so I must remain grateful in ALL things, for all that I DO have. I must remain grateful for the years and life that I had with Emmer. I must glean from those years all that I can and then press on. In her 97 years she said goodbye to a LOT of treasured and dear friends. I watched her weep in loss and heartache and then laugh and reminisce.

Memories have carried me through darker days and her unique sense of humor has carried me into brighter days. What’s next? It’s always the million dollar question no matter where you are in life. My life has already defied many odds. My Grandmother lived past 97, my Mother is a leukemia survivor and I live with epilepsy everyday. “It’s not an arm or a leg” and I can’t imagine that God has washed His hands of me yet.

Heartache is heartache, no matter the cause. In hindsight, I can share of so many things I learned through epilepsy and my brain injury. Everyone in my family experienced heartache during those first few years. I know that was part of God’s plan for gaining insight I would need later in my life as I became Emmer’s constant companion. When my injuries forced me to walk away from my career, I couldn’t imagine what God what do with me. I was heartbroken. He mended my broken heart and made me stronger. He has taught me great lessons in this heartache. He has been mending my brokenness and He will beckon me to His next purpose for my life.

“There is a time for everything, and a season for every activity under the heavens:
a time to be born and a time to die,
a time to plant and a time to uproot,
a time to kill and a time to heal,
a time to tear down and a time to build,
a time to weep and a time to laugh,
a time to mourn and a time to dance,
a time to scatter stones and a time to gather them,
a time to embrace and a time to refrain from embracing,
a time to search and a time to give up,
a time to keep and a time to throw away,
a time to tear and a time to mend,
a time to be silent and a time to speak,
a time to love and a time to hate,
a time for war and a time for peace.”(Ecclesiastes 3:1-8, NIV)

So as we pass through a week marked with noteworthy anniversaries, I choose to focus on the celebration of reunions, the valuable lessons of heartache and the seasons of life God sees us through.

Copyright © Gatewood Campbell, June 2013