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Shaken, Not Stirred

Shaken, Not Stirred

Philadelphia Half Marathon 11.18.12

Life is always more fun with a friend, so shouldn’t we all surround ourselves with a bunch of great friends?! I’m feeling like the luckiest girl in the world to be surrounded by a dedicated group of friends who are committed to Team Shaken, Not Stirred! We think big and Team Shaken, Not Stirred has set our sights on raising $10,000 for the Epilepsy Therapy Project! We need your help to make that happen! If you want to know why this is important, keep reading more of my blog. If you want to learn more about the Epilepsy Therapy Project visit www.Epilepsy.com.

Donating to ETP and supporting Shaken, Not Stirred is super simple, just click this link https://epilepsytherapyproject.myetap.org/fundraiser/2012PHLMarathon/team.do?participationRef=3917.0.251389978 and you can select to sponsor any runner or make a general donation to sponsor the team.

Thank you for taking the time to read about my journey and more importantly for supporting  Team Shaken, Not Stirred! 

Gatewood Campbell

 

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Finally Running For Me

Shaken, Not Stirred!

 2012 TEAM Epilepsy Therapy Project 

Philadelphia Half Marathon 11.18.12

I used to run because my life felt like it was spinning out of control and I needed an escape. Now I’m running because I will not allow my life to spin anymore. I was shaken, and now I will not be stirred!

I was diagnosed with Epilepsy in 2005 caused by a Mild Traumatic Brain Injury earlier that year. I was only 32 years old, married ten years, with two sons, ages 7 and 2, and I was working full time. Our world was rocked in ways we could not have predicted. Seven years later, my fingertips can still recall the sharpness of the eleven life changing stitches hidden by my hair. I sat in a staff meeting unable to comprehend anything that was being said and worried that my life would never be the same. I was partially correct. I was definitely shaken!

I am still a wife and I am still a mom. I am no longer employed but instead focus my time and attention with those that I love. My days are filled with my family, including my 96 year old grandmother, with whom I spend several days each week helping age gracefully, and ensuring she has her afternoon cocktail when she chooses (a Martini, of course). I have been seen by more doctors than I can count on my extremities, been connected to enough wires to rewire our home three times over and weaned on and off drugs more times than the Octomom weaned children off bottles.  After my initial diagnosis, months of cognitive rehabilitation and some difficult trial and error with medicine, we eventually found the right concoction. With the exception of a few minor adjustments I was fortunate to have about four years with very few problems. For a while, I was not shaken and not stirred.

My world started spinning again last spring when I began having breakthrough seizures. It took me several weeks, and several seizures, to realize what was happening. I had become so accustomed to having controlled epilepsy, it never occurred to me that the day would come that medicine would fail to stop my seizures. I have tried four new drugs, all of which have serious side effects. We settled on the one with the least offensive side effects that still effectively controls seizures. I’m learning to grow comfortable with the fact that treating epilepsy will affect many parts of my daily life and it’s important that I remain vigilant. I have been shaken, and I have realized some valuable lessons.

Epilepsy is scary and confusing. Nearly 3 million Americans suffer from seizures, yet most people don’t even know the simple first aid steps to help a person having a seizure. I am blessed to be among those with epilepsy that can be controlled with drugs. I can help those that are not able to speak up; for the exhausted parents tending to their young child stricken with epilepsy and the variety of complications it brings, for the single adult trying to manage epilepsy and a job but unable to drive a car, for the teenager afraid the next seizure will happen in the school cafeteria or in English class, or for the young mom who just wants family life to be normal again. I am an advocate for epilepsy.

Combining my epilepsy advocacy and my passion for the pavement, I have formed Team Shaken, Not Stirred! We are running the Philadelphia Half Marathon on November 18th to benefit the Epilepsy Therapy Project! Seven of my running buddies have joined Shaken, Not Stirred and together we are setting big goals to raise big money and big awareness for the Epilepsy Therapy Project!

Please join me in this very personal labor of love by making a donation to sponsor me or to sponsor Team Shaken, Not Stirred. I am still in the process of changing drugs now, but that is not going to change my focus. While I am training for this race I will be in our community sharing epilepsy education and awareness. Change will happen when people are aware and I am certainly willing to speak up.

To donate (just like my children already have)  just click this link or copy it to your browser and click the “Sponsor Me” icon. https://epilepsytherapyproject.myetap.org/fundraiser/2012PHLMarathon/individual.do?participationRef=3917.0.251389979 .

I’m deeply grateful to my family and countless friends who have given me support in so many ways and especially this last year. Thank you for loving me when it has been hard to love me, for holding my hand when it would have been easier to let go and for listening when I didn’t make sense.  Thank you for letting me know it’s ok to be me even when I’m still not sure who I am. Most of all, thank you for giving me hope for an easier tomorrow.  A bold new journey is beginning and I’m thankful to be Shaken, Not Stirred!

Cheers!

Gatewood

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Fear NOT the Change

Several months ago I wrote about fear and why we have it, why we need it, and what good it serves. Today I’m facing fear again and it leads me back to the same questions.

Once a week I sit down with a ziplock bag full of medicine, my green seven day pill box and a pill splitter. This morning I dumped out the bag of bottles and looked at the notes I scribbled months ago during a conversation with the doctor.  I knew the date was coming and it made me sick to my stomach to even think about it.  After four months of stepping down dosage of my main anti-seizure med and stepping up a new med, today starts the last phase of the weaning process. I will take a minimum dose of the medicine that sustained me for the last 6 years and the highest dose of the new delight (I nicknamed it that to convince myself that it’s fun). It raises so many questions when forced to depend on something new. Though I have been very slowly raising the strength of the new drug while even more slowly decreasing the old, fear of change remains. Will this work?

So when faced with fear I remind myself to turn more directly and look to my Creator, the One who molded and shaped me in His own image. I must trust Him to see me through this fear-filled time and carry me safely to my next great adventure.

Copyright © Gatewood Campbell, May 2012

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Shaken, Not Stirred

When I was pregnant I read “What to Expect When You’re Expecting”.  People offered advice, whether I wanted it or not. Guess what?  There isn’t a book called “What to Expect When You Have Epilepsy”.  That might have been helpful for me, or maybe not. It might have scared me, or maybe I would have been better prepared.

I was cruising along just fine when epilepsy hit me right on target (pun intended) and distracted me from my very organized, multitasked and planned out life. For 7 years I’ve been adjusting to the changes epilepsy brought to my life. The first couple of years certainly weren’t easy breezy, but it’s all kind of a big blur to me now. I remember lots of doctors, pills, post it notes and catching rides with people. After I realized I couldn’t juggle work and epilepsy, and left the 9 to never-ending grind, I had very few problems for about 4 years. I had regular checkups with my neurologist and just routine blood work to make sure my medication levels were where they needed to be. I felt good. I couldn’t multitask but I could plan and organize enough again. Life was good.

Last Spring things slowly began to change and it caught me off guard.  I was not prepared for things to change.  My medicine quit working and I was having breakthrough seizures. The last year has been a learning experience. Those 4 good years gave me a false security that I had this thing licked. Don’t get me wrong, I believe I can have this thing licked, but I’m not there yet. Over the last year I have spent every month weaning on or off multiple anti-seizure meds in search of the lesser of the evils. It’s the great hunt for seizure control versus manageable side effects. Ask my family, it’s a pleasure to experience. One did a great job controlling the seizures but made me want to crawl out of my skin and I couldn’t sleep at all. Another controlled seizures really well, but it caused me to pretty much wake up without any patience or filter for appropriate speech (and pretty much tell off anyone I saw). That was a really bad bad medicine. Another one made me slur my speech, delay my word retrieval, limit concentration and pretty much screw up all of my processing skills. I’m still suffering the effects of that one. Another one gave me the shakes. My current drug of choice upsets my stomach and I have to time my meals exactly to limit the nausea. Some days I can’t fight the nausea, even with food, and I just have to stay in bed. The medicine makes me sleepy and I need a nap to get through each day. I get dizzy moving from a seated position to a standing position. My gums bleed and stay swollen and are sometimes so painful it’s hard to eat.  I have lost some taste and appetite. My hair thins a little more each day. The blotchy deep purple in my hands and feet is another nice free bonus I guess. And this is the medicine I chose, because the others were worse.

I am not complaining, I am explaining. I count myself among the fortunate patients with epilepsy. Mine is controlled with medication. Although, clearly it’s not the perfect medication. Epilepsy is a disorder in my brain but in order for it to be controlled, I basically have to surrender the rest of my body to medication. Well, that’s just not good enough for me, not long-term anyway. I need more options, we all need more options and I need to find a way to make that happen. I’ve spent the last year researching and networking with others in the epilepsy community and I learned about The Epilepsy Therapy Project. I am thrilled to combine my love of running with the opportunity to raise money for a deeply personal cause.

I have formed Team SHAKEN, NOT STIRRED to run the Philadelphia Half Marathon on Sunday, November 18th and raise $3,000 for The Epilepsy Therapy Project!  I already have one recruit! Sharon McGowan has signed on to Shaken, Not Stirred, which seems appropriate since she is one of the few people who knew me well before all this and has been by my side through it all!

Click this link to visit our own TEAM SHAKEN, NOT STIRRED page to donate, to join our team and to learn more about The Epilepsy Therapy Project. https://epilepsytherapyproject.myetap.org/fundraiser/2012PHLMarathon/team.do?participationRef=3917.0.251389978

I hope to use my involvement with this project to spread awareness and education about epilepsy while I prepare for the race. I’m just beginning this project and my brain is still fried, though over-easy, from the variety of  drugs I have been on, and I’m still weaning off another medicine now. There will be lots more information and updates to come. This is a very exciting opportunity for our family to get involved with the epilepsy community. My hope is that something I do will help someone else be better prepared or perhaps need not be prepared at all.

Copyright © Gatewood Campbell, May 2012

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Reaching Beyond Comfort

There have been two hot topics in our town recently. One is just annoying, and the other raises moral and ethical issues and also gives all of us the opportunity to push ourselves beyond our comfort zone.

One is the new quadrant left traffic pattern which someone in Raleigh claims will alleviate congestion. That remains to be seen, amid a sea of solid red brake lights. I can’t speak directly to this as I have managed to completely avoid this area of town for 9 solid days and will continue my boycott as long as possible (on the advice of all those who have attempted to navigate said quadrant).

The other hot topic is the Town Board’s decision to deny a rezoning request that would have allowed a mental health facility offering both inpatient and outpatient care. The Town Planning Board recommended the rezoning 8-1 yet the Town Board voted down the request 4-2. I didn’t attend the meetings, but I did keep up with the information that was published and I was bothered by what I read.

The rezoning became a debate because the 17 acres in question is adjacent to a neighborhood. Here it comes, Not In My Back Yard.  Oh yes, loud and clear, that’s what the neighbors said over and over and over again. Some said they weren’t against the need for the facility, again, just not right in their backyard. I cringed as I read comments from opponents who said they were afraid of patients who might do something stupid. Stupid? Oooo, I didn’t like hearing this word used when discussing this issue. I get it. The problem is fear. We fear what we don’t understand. We steer clear of what we don’t understand. It makes us uncomfortable, so we dodge it.

Here is what I do understand. People with mental illness are still people, living breathing people. They have families who love them and are searching for qualified professionals to help them get better. They need proper facilities to help them, whether we are comfortable or not. The whole thing really struck a chord with me. Why is it ok to turn our heads or close our eyes and not look at the need, whatever it may be? 

I was disappointed that I didn’t hear anyone offering solutions or compromises that would have swayed the Town Board’s decision, or perhaps educated both sides of the issue. I was frustrated that 60 much-needed inpatient beds as well as outpatient facilities in Mecklenburg County will not be ready in 2013 which puts even more people out of help. I was frustrated that our town had a chance to employ over 150 people and missed out on it, not to mention the construction that it would have brought (as well as broken equipment, cha-ching CAT). My Grandfather spent many summers volunteering his time at Broughton Hospital to relieve the overworked Chaplain. My Grandmother and I talked about it last week. She cried as she recalled the desperation she saw in families who needed professional care for their loved ones. She shook her head and said it was a shame Huntersville had missed out on the chance to really make a difference for a lot of people in need. When you have seen it first hand it always brings a different perspective. She has seen the other side and it made her weep.

As I thought about this over the last week, I had to take a long hard look at myself. OK, Miss Priss, just what are you doing to make a difference for someone else?  Was I guilty of turning my own head too?

BOOYAH! OUCH!

Guess who else has a comfort zone? Uh huh! I can give you a list a mile long of reasons why I have a comfort zone and they all make sense, medically, emotionally and Gatewoodally. But seriously, I had to look at myself and wonder if I was going to ask others to step out, then I had to be willing to do the same myself.

Do I have any extra time to do anything else? Well, what exactly do I do with my time? I go to the gym 3 times a week and aside from the really old lady keeper and the obvious endless chores and tasks of a car-pooling and sometimes seizing stay at home mom of 2 boys who sits at home and eats ice cream all day, I guess nothing much. Oh yea, and I run. OH YEA, I RUN! That’s what I need to do! It hit me like a sign blown over by the wind! There is a 5K/10K at our local high school this Saturday to benefit the Exceptional Children’s programs in our local schools. I’m running a half marathon the following weekend so the 10K would even be the right mileage for my schedule. Perfect, except that I didn’t know anyone else running the 10K. That threw a mild kink in my plan, but Johnny and the boys planned to go with me so I wouldn’t be there by myself. Great, I can use my running to help a wonderful cause! Fantastic! So I signed up for the Run TOO Overcome, this Saturday, March 17th at 8 am.

Together Overcoming Obstacles!

The mission of the Run TOO Overcome is to provide awareness and support for the children, families, and teachers whom meet the daily challenges, and celebrate the joys, of supporting our special needs community. The Run Too Overcome unites our community each year to raise funds to provide our special needs teachers with the equipment and supplies needed to provide differentiated instruction to enrich and engage students of all ability levels.

I finished my registration and picked up Justin from baseball practice and he told me when his next practice would be – yep, Saturday morning, 9am. AH, HELLO? Guess what that means? No Johnny and no kids with me at the race on Saturday. God really does have a sense of humor folks because I’m going WAY outside of my comfort zone for this one. It’s all solo on this one. OK, so I had to get over myself and move on. The Run TOO Overcome isn’t about my comfort zone anyway, it’s about celebrating the awareness and support of the special needs community and raising funds for our local schools. If reaching beyond my comfort zone celebrates others who have overcome adversity, Amen to that!

(Don’t worry Mom, I’ll carry my phone with me during the race just in case, though seriously, I’m with Michael Scott, In Case of Emergency, just call 911).

Copyright © Gatewood Campbell, March 2012